Since Maggie’s diagnosis, we have gotten used to unwanted news and adapting our lives. So much so, news that would send most people into a panic, AJ and I tend to just say “It is what it is.” So getting in Continue Reading
NNZ trial press report released
This past week has been a roller coaster of emotions. Last Tuesday November 12,2014, two days after Maggie’s 4th birthday. Neuren Pharmaceuticals released the information regarding the NNZ trial for Rett Syndrome. This is a big deal. There are several Continue Reading
First Day of School
There has been a lot of stress and anxiousness preparing for Maggie’s first day of school. Ours not hers. We kept telling Maggie that she was going to be going to school and it was going to be fun. She didn’t really care, but how could Continue Reading
Mad scientist hyphenate / Producer
A blog written by my wife, Jenny. She is smarter and funnier than I am, so enjoy. When I wake up everyday, I usually pause, take a breath and hope for the best. The truth is we really don’t know Continue Reading
