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Magnolia's Hope

They thought they would teach their daughter about the world Instead they have to teach the world about their daughter

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Author: ajtesler

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Gymnastics

October 26, 2018October 26, 2018 ajtesler1 Comment

When soccer season ended last year, we weren’t sure what to do.  We want Maggie to be involved in all of the things we were involved in as kids – sports (AJ & Jenny), dance (Jenny), cheerleading (AJ), whatever she Continue Reading

Tagged gymnastics
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My new piece on Maggie’s style

August 10, 2018August 10, 2018 ajtesler2 Comments

I wrote another article for Rett Girl magazine and I hope you’ll give it a read.  It’s been hard to try to figure out Maggie’s own personal style, since both AJ and I have our own ideas about what style Continue Reading

Tagged kids,nonverbal,piece,styling
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It gets easier.

June 22, 2018June 22, 2018 ajtesler4 Comments

I remember talking to some families when Maggie was first diagnosed who would tell me “it gets easier, though it may not get better.”  I didn’t fully understand what that meant at the time, but I’m starting to now. When Continue Reading

Tagged easier
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Being her voice

January 19, 2018 ajtesler2 Comments

I read a news story recently that frustrated me to no end.  It reminded me how far we have to go to get to real understanding of patient rights and saddened me for this family.  A girl, living with Rett Continue Reading

Tagged #rettsyndrome,advocate,disease,doctors,rare,rett,voice
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Reverse Rett LA

September 21, 2017September 21, 2017 ajteslerLeave a comment

On October 13th, the Rett Syndrome Research Trust’s largest annual fundraiser will take place in Los Angeles.  Jenny and I are co-chairing this year in addition to chairing the auction.  We have set a goal of raising $1MM at this Continue Reading

Tagged la,rett,reverse
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I’m running a triathlon for Maggie

September 7, 2017September 9, 2017 ajteslerLeave a comment

I have seen people run races for causes. I have heard that this is a thing people do. But I am not a runner. I am not a biker. I am not a swimmer. I am just a dad who Continue Reading

Tagged day,memorial,weekend
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How to Concert

August 10, 2017August 9, 2017 ajtesler2 Comments

Whenever we want to do something big and fun that typical kids get to do, it takes careful planning.  We spend most of the time wondering if we’re crazy for making her do some of these things, and the rest Continue Reading

Tagged adventure
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It’s been a long year

July 27, 2017July 24, 2017 ajteslerLeave a comment

I haven’t sat down to write a blog about Maggie since December.  That’s actually not right.  I have sat down to write, but I didn’t know what to say.  Jenny took up the reins and she kept you all updated Continue Reading

Tagged long,year
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Last Day of Pre-K

January 19, 2017 ajtesler1 Comment

With Betsy Devos’ hearing making national headlines this week, I thought it’d be helpful to share why a federal focus on special needs education is so important to us.  Maggie “graduated” from Pre-k last summer.  She wasn’t there.  But she Continue Reading

Tagged day,prek
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Take a breath

December 21, 2016 ajteslerLeave a comment

It’s been awhile since we posted anything here.  After Rett Syndrome Awareness month, we’re emotionally and physically drained.  The event is an intense amount of work, the awareness and videos takes up time too.  On top of that, Maggie’s health Continue Reading

Tagged give,rett

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AJ and Jenny Tesler

When their daughter was diagnosed with rare neurological disease, Rett Syndrome, they promised her they would do everything they could to find a cure and help her live the best life she could. It was then that Magnolia's Hope was born.

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