Why the #hopeisreal…

Last week, Jenny and I wrapped up our formal fundraising efforts for this year.  Our friend, Jaime Morgenstern, who runs Gilt City events gives us a booth and donates some money to RSRT.  They also donate a bunch of liquor and wine for future Rett Syndrome events.  It’s very generous and we’re grateful she thought[…]

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Symptoms of Rett Syndrome | Share for Awareness

  Rett is a progressive disorder – it will get worse and worse until there is a cure.  In other words,  we are never out of the woods.  Every girl’s Rett syndrome is different. These were Maggie’s Rett symptoms last year. Maggie has lost her speech. Maggie’s arms & hands have Parkinson’s like tremors. Maggie hasn’t[…]