Skip to content
  • <---- The Documentary
  • Home
  • Subscribe
    • Follow us on Instagram
    • Like us on Facebook
    • Follow us on Twitter
    • Magnolia’s Hope on Youtube
  • About Rett
  • Donate to the Cause
  • Shop Magnolia’s Hope
Magnolia's Hope

They thought they would teach their daughter about the world Instead they have to teach the world about their daughter

Primary Menu
  • <---- The Documentary
  • Home
  • Subscribe
    • Follow us on Instagram
    • Like us on Facebook
    • Follow us on Twitter
    • Magnolia’s Hope on Youtube
  • About Rett
  • Donate to the Cause
  • Shop Magnolia’s Hope

Author: Jenny Tesler

  • Home
  • Jenny Tesler
  • Page 2
Uncategorized

The journey of our documentary

February 5, 2021February 5, 2021 Jenny TeslerLeave a comment

In 2019 we released our trailer for our documentary with the intention that 2020 would be the year we would share it. Little did we know how hard that would end up being. We were having a very exciting 2019 Continue Reading

Tagged clinicaltrial,Documentary,family,filmmaking,rettsyndrome
Uncategorized

Spinning out of control

October 15, 2020October 15, 2020 Jenny Tesler3 Comments

A very common statement said to me is, “I don’t know how you do it”. I usually don’t know how to respond other than smile and change the subject. Truth is, there are days that life is spinning out of Continue Reading

Tagged awareness,Rett syndrome,seizures,symptoms,vertigo
Uncategorized

Diagnosis: uncertainty

October 8, 2020October 8, 2020 Jenny Tesler1 Comment

We have all known life is uncertain, but 2020 has really handed us uncertainty on a silver platter. If anything Covid has given the world a glimpse into our lives. The entire world is contemplating medical uncertainty, a range of Continue Reading

Tagged awareness,october,raredisease,Rett syndrome,rettsyndromeawareness,seizures,specialneeds,specialneedsfamily,specialneedsparenting
Rett Awareness

What would you ask for?

September 12, 2020September 12, 2020 Jenny TeslerLeave a comment

We have been told numerous times, “We are so close to a cure.We are so close to treatment for Rett.” We have had so much hope for a cure, but even a treatment, something to abate one of her symptoms Continue Reading

Tagged disability,hand function,hope,rett awareness,Rett syndrome,seizures,special needs,symptoms
Uncategorized

Positive moments

July 10, 2020October 15, 2020 Jenny Tesler1 Comment

Everyday I try to focus on the positive. I thought I would share some of my positivity with you. Here’s 10 moments during this pandemic that have made me realize, life isn’t so bad. (scroll down for blog) Top 10 Continue Reading

Tagged #rettsyndrome,coping,Coronavirus,Covid19,family,humor,mentalhealth,momlife,pandemic
Uncategorized

Surviving Corona

April 17, 2020June 25, 2020 Jenny TeslerLeave a comment

Life was finally moving in a smooth direction. In late February, thanks to new dosing of medications, her seizures were back to being under control, her breathing issues went from a constant struggle to a regular but not constant problem Continue Reading

Tagged #rettsyndrome,Coronavirus,disney,girlpower2cure,seizures
Uncategorized

We are not alone….

November 4, 2019 Jenny TeslerLeave a comment

We have a special treat. Sara Polon reached out to us a few years ago and has been consistently supporting us by raising awareness for Rett Syndrome, fundraising through her business, Soupergirl; and sending us soup to lift our spirits Continue Reading

Tagged inspires,Magnolia,meeveryday,met,polon,sara
Uncategorized

Let’s play ball!

June 29, 2019July 2, 2019 Jenny TeslerLeave a comment

Summer has begun for everyone, at least in our hemisphere. On social media I have seen families sending their kids off to camps, going on family trips and also just swimming by the pool.  It’s been a tough few months Continue Reading

Tagged #magnoliashope,#rettsyndrome,adventure,awareness,begins,hope,rare disease,reverserett,summer
Uncategorized

Should we go to the ER?

May 30, 2019May 30, 2019 Jenny TeslerLeave a comment

I’m not sad. I’m angry with Rett Syndrome.  We are in a very strange and confusing place as parents – not just parents of a beautiful child with special needs; not just parents of a brave girl with Rett Syndrome; Continue Reading

Tagged #magnoliashope,#rettsyndrome,adventure,awareness,coping,cure,epilepsy,feeding tube,special needs
Uncategorized

The Aruba nightmare

April 5, 2019April 5, 2019 Jenny TeslerLeave a comment

Before Rett Syndrome, before hospital visits and a scary diagnosis. We were just a tiny family dealing with ordinary issues. I thought I would do a flashback post to when Magnolia was one year old and we went to Aruba. Continue Reading

Tagged #rettsyndrome,adventure,aruba,CDC,family,familylife,nightmare,Norovirus,vacation

Posts navigation

Older posts
Newer posts

Collaborative Blogging

AJ and Jenny Tesler

When their daughter was diagnosed with rare neurological disease, Rett Syndrome, they promised her they would do everything they could to find a cure and help her live the best life she could. It was then that Magnolia's Hope was born.

Subscribe for updates

(Un)Subscribe to Posts

Magnolia’s Hope Documentary (Official Teaser)

https://www.youtube.com/watch?v=Ud_OVaxCSE4
Close

Magnolia’s Hope The Documentary

Copyright 2020 All rights reserved Theme: Blog Expert by Themeinwp